Get-togethers on International Pompe Day
Thanks to the Pompe Support Team and other hosts, successful get-togethers were held around the UK to celebrate International Pompe Day.
Glisten Spring 2019, out now!
The Spring 2019 edition of our magazine Glisten is out now, 60 pages packed with news and information.
Do you feel no-one has heard of GSD?
That is what member Niamh, who has GSD3, thought until she got a shock as she completed her GCSE Biology exam.
New infographic helps celebrate International Pompe Day
For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.
CATS first birthday get together
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.
Nursery adopts Jeans For Genes to fundraise for AGSD-UK
The Wendy House Nursery in Erdington, Birmingham, has signed up for ‘Jeans for Genes’ in 2019 to fundraise for AGSD-UK!