Just a month to go to the “Walking in Wiltshire” get-together weekend for all those with McArdle’s. 17-19 June.
AGSD-UK can provide support to individuals and families affected by GSD.
The walking course for this year is to be held in the Pembrokeshire Coast National Park, 30 July to 6 August. Full details now available here on our website.
International Pompe Day – 15th April 2022
Researchers are looking for new and improved drugs and treatments for Glycogen Storage Disease.
More information about the newly published Rare Diseases Action Plan for England.