Julie Garfield has been making bag tags for Pompe children to go back to school.
AGSD-UK working with NICE towards approval for new treatment for Pompe disease.
The latest edition of our magazine Glisten is here, dated August 2020. Packed with news, reports, research and fundraising ideas.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
Pompe Support Team’s Medical Overview leaflet is now being used in Australia.
Audentes is now enrolling patients with late-onset Pompe disease in the Phase 1/2 clinical trial.