The following links may be of interest to those learning about GSD4, they open in a new tab or window in your browser.
Map of people with other very rare GSDs
We maintain a map of people in the UK affected by the other very rare GSDs, including GSD4, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.
Go to a new tab with the map page for more details, or contact the Coordinator.