Support is available through our GSD0 coordinator, and we have a link to more detailed information.
Support from our GSD0 coordinator
The coordinator is Abbie Maguire. Abbie became the GSD0 coordinator in 2015. She is studying for a PhD in neuroscience. She joined AGSD-UK to help people when they ask “What is wrong with me?” She feels it is an honour to be involved in such a fantastic support network, full of very brave individuals and that we can all beat this disease in our own way.
More in-depth information on GSD0 from the US National Institutes of Health, National Library of Medicine.
Map of people with ketotic GSDs
We maintain a map of people in the UK affected by the ketotic GSDs, including GSD0, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.