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Information & Support

Support is available through our GSD0 coordinator and our social media. Also, we have a link to more detailed information.

Support from our GSD0 coordinator

Abbie MaguireThe coordinator is Abbie Maguire. Abbie became the GSD0 coordinator in 2015. She is studying for a PhD in neuroscience. She joined AGSD-UK to help people when they ask “What is wrong with me?” She feels it is an honour to be involved in such a fantastic support network, full of very brave individuals and that we can all beat this disease in our own way.

Contact Abbie through the “Message us” page.

“GSD and Me” web site

Vitaflo have a web resource for people affected by the liver GSDs. It describes five of the most common hepatic GSDs (0, 1, 3, 6 and 9). It provides useful advice on dietary control and exercise, as well as sections on school, employment and travel.

Visit Vitaflo’s “GSD and Me” web site.

Further information

More in-depth information on GSD0 from the US National Institutes of Health, National Library of Medicine.

Go to the Genetic Home Reference web site entry for GSD0.

Map of people with ketotic GSDs

We maintain a map of people in the UK affected by the ketotic GSDs, including GSD0, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.

Go to a new tab with the map page for more details, or contact the Coordinator.

AGSD-UK social media

Don’t forget that AGSD-UK has it’s own Facebook Page and a Twitter account. Click on the icons in the page footer, or go to our Social Media page.