Support is available through our GSD0 coordinator and our social media. Also, we have a link to more detailed information.
Support from our GSD0 coordinator
The coordinator is Abbie Maguire. Abbie became the GSD0 coordinator in 2015. She is studying for a PhD in neuroscience. She joined AGSD-UK to help people when they ask “What is wrong with me?” She feels it is an honour to be involved in such a fantastic support network, full of very brave individuals and that we can all beat this disease in our own way.
“GSD and Me” web site
Vitaflo have a web resource for people affected by the liver GSDs. It describes five of the most common hepatic GSDs (0, 1, 3, 6 and 9). It provides useful advice on dietary control and exercise, as well as sections on school, employment and travel.
More in-depth information on GSD0 from the US National Institutes of Health, National Library of Medicine.
Map of people with ketotic GSDs
We maintain a map of people in the UK affected by the ketotic GSDs, including GSD0, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.
AGSD-UK social media
Don’t forget that AGSD-UK has it’s own Facebook Page and a Twitter account. Click on the icons in the page footer, or go to our Social Media page.