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Von Gierke Disease (GSD1)

Information & Support

The following links may be of interest to those learning about GSD1, they open in a new tab or window in your browser.

Map of people affected by GSD1

We maintain a map of people in the UK affected by GSD1, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.

Go to a new tab with the map for more details, or contact the Coordinator.