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Von Gierke Disease (GSD1)

Information & Support

A booklet for children with GSD1a, a map of affected people in the UK and some links of interest to those learning about GSD1.

My GSD and me!

A 24 page illustrated booklet giving a child’s eye view of what is involved with living with GSD1a. By Dr Gabriella Clark, a junior doctor at the Royal Cornwall Hospital. She has had a longstanding interest in paediatric endocrinology since beign diagnosed with type 1 diabetes, and being inspired by a friend with GSD1a.

View the “My GSD and me!” booklet online and flick through the pages.

Download a PDF of the “My GSD and me!” booklet.

Or ask us to send you a printed copy, using the “Message us” form.

Map of people affected by GSD1

We maintain a map of people in the UK affected by GSD1, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.

Go to a new tab with the map for more details, or contact the Coordinator.

AGSD-UK social media

Don’t forget that AGSD-UK has it’s own Facebook Page and a Twitter account. Click on the icons in the page footer, or go to our Social Media page.

“GSD and Me” web site

Vitaflo have a web resource for people affected by the liver GSDs. It describes five of the most common hepatic GSDs (0, 1, 3, 6 and 9). It provides useful advice on dietary control and exercise, as well as sections on school, employment and travel.

Visit Vitaflo’s “GSD and Me” web site.