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Help us help those affected by GSD

There are many ways in which you can help AGSD-UK and the GSD community… here is an introduction to the opportunities, with links to further details.

Donate – the immediate way to help

The most immediate way to help support our work is to make an online donation, but there are also many other ways to donate. You can choose either one-off and regular donations.

Our donations page has all the details.

Your choice of fundraising opportunities

You could join one of our regular fundraising events such as a sponsored walk or cycle ride. You could do your own sponsored activity such as a skydive. You could organise your own event such as a car boot sale or coffee morning. You could suggest donations in place of birthday presents. .

Our fundraising page will give you more ideas.

Admin support in our office

It is a great help to have admin support at our office. If you live close by maybe you could help when we mail about the magazine, or are preparing for the conference. There may also be more regular opportunities to help with the office routine.

Contact the Chief Executive with your offer of help.

Join the support team at our conference

We need a large team of volunteers at our annual conference to help man the registration desk and the Glycogen Store stand, and generally keep things running smoothly.

Contact the Chief Executive.

Become a member of a GSD support team

We have several teams of people affected by one of the GSDs who assist other patients, support their GSD Coordinator and provide support at specialist centres. Experience with your condition is a big advantage, as is a commitment to helping others.

Talk to your GSD Coordinator in the first instance.

Could you be a future GSD coordinator?

Once you have been involved for a few years in support of your own GSD variant, the opportunity may arise to become the coordinator for that particular GSD. This is a significant opportunity to contribute to the well-being of others. If you are interested and there is a vacancy for coordinator of your GSD, please get in touch.

Contact the Chief Executive.

Expertise to contribute to the Board of Trustees?

Do you have an in-depth understanding of GSD, or a particular expertise of relevance to managing the Association? Any full member of the Association may be co-opted to join the Board of Trustees and then stand for election at the next AGM.

Contact the Chairman to explain the expertise you can offer.