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Keep up with the GSD news

Watch out for more GSD-related news most weeks.

Glisten Mar 22 Newsletter

The March 22 edition of Glisten is now available to download.

Winter Season lives on!

Winter Season ended 31 January – but all videos are available for the long term.

Our regularly updated COVID-19 coronavirus information.  For individual advice, please contact your medical team.

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Have you read the latest news?

Wales Rare Diseases Action Plan.

Wales Rare Diseases Action Plan.

Action Plan The Welsh Government have now published their Rare Diseases Action Plan in support of the 2021 UK Rare Disease Framework. The Wales Rare Diseases Action Plan 2022-2026 is available at the following links:  English version Welsh version    

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Use the scroll links to move back and fore through our news stories.
If you have a GSD news story message us or see Notes for contributors.

What do you need from AGSD-UK?

I am newly diagnosed and need information.

What are the sources of help and support?

In what ways can I support AGSD-UK?

What are the sources of medical guidance?

How do I find policies, finance, reports?

Read some personal stories

Do you have an interesting personal story to tell? Just message us or visit the Notes for contributors.

For personal stories on an individual GSD, visit the page for that GSD.

What and who we are

  • National support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • Membership based with an elected board of trustees.
  • A company limited by guarantee and a registered charity.
  • Collaborators with UK rare disease and international GSD groups.

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.