Our regularly updated COVID-19 coronavirus information. For individual advice, please contact your medical team.
How we did
Have you read the latest news?
An update on avalglucosidase alfa.
AGSD-UK’s Zainib Hussain has been providing much needed support.
7 year old twins in Scotland have received their first Covid vaccinations.
The CureGSD1b Research Alliance is working extensively on a full understanding of the research landscape related to GSD1b at the moment.
We again will be releasing videos on every Monday of January for our Winter Season.
An update on the appraisal of treatments for Pompe by NICE.
Well done to Nigel Walker who has completed the 2021 London Marathon.
This year AGSD-UK will again be offering a series of talks and presentations
What do you need from AGSD-UK?
For personal stories on an individual GSD, visit the page for that GSD.
What and who we are
- National support group for those affected by Glycogen Storage Disease (GSD) and their families.
- Membership based with an elected board of trustees.
- A company limited by guarantee and a registered charity.
- Collaborators with UK rare disease and international GSD groups.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.