What do you need from AGSD-UK?
Sioned Williams to give debut performance of new instrument, the Soveida Harp, which articulates its sound in eerie stereo.read more
Every year people with muscle GSDs, particularly McArdle’s for which the most effective treatment is physical activity, participate in this walking week.read more
We‘ve been improving our database and ensuring GDPR compliance. We are now starting to have fascinating insights into our statistics.read more
Thanks to the Pompe Support Team and other hosts, successful get-togethers were held around the UK to celebrate International Pompe Day.read more
The Spring 2019 edition of our magazine Glisten is out now, 60 pages packed with news and information.read more
That is what member Niamh, who has GSD3, thought until she got a shock as she completed her GCSE Biology exam.read more
For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.read more
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.read more
Do you have an interesting personal story to tell? See the relevant section of Notes for Contributors.
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What and who we are
- National support group for those affected by Glycogen Storage Disease (GSD) and their families.
- Membership based with an elected board of trustees.
- A company limited by guarantee and a registered charity.
- Collaborators with UK rare disease and international GSD goups.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.