Read some personal stories

I can’t express how grateful we are to Andrew Wakelin for his superb advice and support. And to Jane Lewthwaite, without whose professional expertise, dedication and hard work we’d be at a loss. So a very heartfelt ‘Thank you’.

Lorraine Gibney

Welcome Neil, looking forward to seeing AGSD-UK develop further under your leadership. Many thanks to Allan for all your hard work and support over the 8 years since I was diagnosed. Best wishes to you and Barbara.

Amanda Porter

I am so lucky to get to know your organization and be exposed to other professional expertise, and most importantly get to learn from patients’ stories.

Medical professional, UAE

I enjoyed the photos of the walking course this year. I will always be grateful for my week in Wales. What I learned from you will forever be in the back of my mind.

Lorraine Baguley, Australia

The organisers of the Inca Trail trek to Macchu Pichu have accepted the letter you wrote and I am now cleared to go. Thank you so much, you are a star!

Deborah Corcoran

Huge, huge thanks to Allan. Your dedication and hard work made an incredible difference. Welcome Neil. Hope to see you all at the conference.

Doris Noe

I really appreciate all your help and support, even though my daughter’s diagnosis was not a muscle GSD.

Anonymous mother

Thank you for writing the letter of support! I can’t begin to express how grateful I am. I feel confident that I will now be taken much more seriously.

Rebecca, USA

Thanks AGSD-UK. I properly loved Wales, such a wonderful time, the most beautiful weather and lovely friends.

Rachel Thomas

Thank you for once again arranging a wonderful week of walks, fun and friendship. We are indebted to you for all that you do for us.

Sioned Williams

We are learning a lot with you and your writings! Your work is changing the way people see illness, not only McArdle’s, but others. Never will thank you enough.

Dina, Portugal