Select Page

Fundraise on Ride London

Places available in Prudential Ride London, 4th August.

Attend conference

Next conference – 5/6 October 2019, Daresbury Park, Cheshire

Buy our recipe book

Special offer… 25% off our 60 page recipe book.

Join a walking course

For people with McArdle’s and other muscle GSDs.

I or a family member are diagnosed and need information

I or a family member need some help and support

I would like to get involved with supporting AGSD-UK

I need sources of medical guidance for someone with GSD

I need information on governance, policies, reporting and finance

Keep up with the latest news

We are recruiting a CEO

AGSD-UK is seeking to recruit a Chief Executive Officer, a senior manager looking for a rewarding move within the charity sector. Closing date 5 April.

What and who we are:

  • The national support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • Membership based with an elected board of trustees.
  • A company limited by guarantee and a registered charity.
  • Collaborators with other UK rare disease groups.
  • Members of international bodies such as the International Pompe Association (IPA) and the International Association for Muscle Glycogen Storage Disease (IamGSD).

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.

Personal stories