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Keep up with the news

We have more GSD-related news every few days.

Join our web team

Can you volunteer a few hours a week?

Help with fundraising

Personal challenges… Organised events… Social media…

Read the annual report

Our 2018/19 annual report is now available.

Latest news


How we did



In touch

What do you need from AGSD-UK?

I am newly diagnosed and need information.

What are the sources of help and support?

In what ways can I support AGSD-UK?

What are the sources of medical guidance?

How do I find policies, finance, reports?

Read some personal stories

Do you have an interesting personal story to tell? Just message us or visit the Notes for contributors.

Have you read the latest news?

Do you have a GSD news story?  Message us, or see the news section in Notes for contributors.

Use the scroll links to move back and fore through our news stories.

What and who we are

  • National support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • Membership based with an elected board of trustees.
  • A company limited by guarantee and a registered charity.
  • Collaborators with UK rare disease and international GSD goups.

You tell us how we did…

It is really valuable for staff, volunteers and members to hear feedback on our efforts. Please use the “Message us” form.

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.