Fundraise on Ride London

Places available in Prudential Ride London, 4th August.

Find out more

Attend conference

Next conference – 5/6 October 2019, Daresbury Park, Cheshire

Learn more

Buy our recipe book

Special offer… 25% off our 60 page recipe book.

Order here

Join a walking course

For people with McArdle’s and other muscle GSDs.

More info

I or a family member are diagnosed and need information

Learn about GSD

I or a family member need some help and support

Access support

I would like to get involved with supporting AGSD-UK

Become involved

I need sources of medical guidance for someone with GSD

Find guidance

I need information on governance, policies, reporting and finance

Get the data

Keep up with the latest news

We are recruiting a CEO

Mar 15, 2019

AGSD-UK is seeking to recruit a Chief Executive Officer, a senior manager looking for a rewarding move within the charity sector. Closing date 5 April.

World Record at Evelina GSD Family Day?

Mar 6, 2019

Maybe a World Record, new friendships, knowledge and reassurance for those affected by GSD at the Evelina Hospital’s GSD Family Day.

FDA grants Breakthrough Therapy Designation to Amicus

Feb 28, 2019

The U.S. FDA has granted Breakthrough Therapy Designation to Amicus’ AT-GAA in Late Onset Pompe Disease.

Cori the Supercat rides again!

Feb 19, 2019

Cori is a cat, with lots of kitten friends. He is on a mission to support children with GSD3.

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What and who we are:

The national support group for those affected by Glycogen Storage Disease (GSD) and their families.
Membership based with an elected board of trustees.
A company limited by guarantee and a registered charity.
Collaborators with other UK rare disease groups.
Members of international bodies such as the International Pompe Association (IPA) and the International Association for Muscle Glycogen Storage Disease (IamGSD).

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.