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Fundraise on Ride London

Places available in Prudential Ride London, 4th August.

Attend conference

AGSD-UK conference – 5/6 October 2019, Daresbury Park, Cheshire

Buy our recipe book

Special offer… 25% off our 60 page recipe book.

Join a walking course

For people with McArdle’s and other muscle GSDs.

I am newly diagnosed and need information.

What are the sources of help and support?

In what ways can I support AGSD-UK?

What are the sources of medical guidance?

How do I access policies, finance and reports?

Keep up with the latest news

Do you have a GSD news story?  We’d like to know. See the relevant section of Notes for Contributors.

Personal stories

Do you have an interesting personal story to tell? See the relevant section of Notes for Contributors.

What and who we are:

  • The national support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • Membership based with an elected board of trustees.
  • A company limited by guarantee and a registered charity.
  • Collaborators with other UK rare disease groups.
  • Members of international bodies such as the International Pompe Association (IPA) and the International Association for Muscle Glycogen Storage Disease (IamGSD).

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.