Our regularly updated COVID-19 coronavirus information. For individual advice, please contact your medical team.
How we did
Have you read the latest news?
1 week to go until Rare Disease Day 2022.
Trials for a gene therapy treatment for GSD1a are continuing.
New research information has been added to the GSD3 website page.
Over the Wall have residential and virtual camps available in 2022.
An update on avalglucosidase alfa.
AGSD-UK’s Zainib Hussain has been providing much needed support.
7 year old twins in Scotland have received their first Covid vaccinations.
The CureGSD1b Research Alliance is working extensively on a full understanding of the research landscape related to GSD1b at the moment.
What do you need from AGSD-UK?
For personal stories on an individual GSD, visit the page for that GSD.
What and who we are
- National support group for those affected by Glycogen Storage Disease (GSD) and their families.
- Membership based with an elected board of trustees.
- A company limited by guarantee and a registered charity.
- Collaborators with UK rare disease and international GSD groups.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.