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Keep up with the GSD news

Watch out for more GSD-related news most weeks.

COVID-19 survey results

Infographic on the results of our “COVID-19 & GSD” survey.

Glisten autumn – out now!

Our Glisten magazine’s August 2021 edition of 48 pages is out now!

Our regularly updated COVID-19 coronavirus information.  For individual advice, please contact your medical team.

Latest news


How we did



In touch

Have you read the latest news?

We are recruiting a CEO

We are recruiting a CEO

AGSD-UK is seeking to recruit a Chief Executive Officer, a senior manager looking for a rewarding move within the charity sector. Closing date is 02 August 2021.

read more

Use the scroll links to move back and fore through our news stories.
If you have a GSD news story message us or see Notes for contributors.

What do you need from AGSD-UK?

I am newly diagnosed and need information.

What are the sources of help and support?

In what ways can I support AGSD-UK?

What are the sources of medical guidance?

How do I find policies, finance, reports?

Read some personal stories

Do you have an interesting personal story to tell? Just message us or visit the Notes for contributors.

For personal stories on an individual GSD, visit the page for that GSD.

What and who we are

  • National support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • Membership based with an elected board of trustees.
  • A company limited by guarantee and a registered charity.
  • Collaborators with UK rare disease and international GSD groups.

You tell us how we did…

It is really valuable for staff, volunteers and members to hear feedback on our efforts. Please use the “Message us” form.

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.