Introducing our GSD6 coordinator and support from AGSD-UK, directly and via our social media.
GSD 6 Coordinator
The AGSD-UK Coordinator for GSD6 is Caroline Calder, who has the condition herself. (This is a voluntary role.) Everyone in the UK diagnosed with GSD6 should register with Caroline to be kept up-to-date with developments.
AGSD-UK social media
Don’t forget that AGSD-UK has it’s own Facebook Page and a Twitter account. Click on the icons in the page footer, or go to our Social Media page.
Map of people with ketotic GSDs
We maintain a map of people in the UK affected by the ketotic GSDs, including GSD6, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.
“GSD and Me” web site
Vitaflo have a web resource for people affected by the liver GSDs. It describes five of the most common hepatic GSDs (0, 1, 3, 6 and 9). It provides useful advice on dietary control and exercise, as well as sections on school, employment and travel.