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Hers Disease (GSD6)

Information & Support

Introducing our GSD6 coordinator and support from AGSD-UK, directly and via our social media.

GSD 6 Coordinator

The AGSD-UK Coordinator for GSD6 is Caroline Calder, who has the condition herself. (This is a voluntary role.) Everyone in the UK diagnosed with GSD6 should register with Caroline to be kept up-to-date with developments.

You can contact Caroline via the “Message us” page.

Specialist Care Advisor

AGSD-UK specialist care advisor Elizabeth Davenport is available to help with all aspects of non-clinical support. She can offer a listening ear plus information and advocacy around a whole range of issues, including education, your rights at work, social care, transport, housing, and community grants, so you can get the support and services you need.

Don’t hesitate to contact Elizabeth by email

Contact Elizabeth by email.

Benefits Advisor

AGSD-UK benefits advisor Zainib Hussain can help with applications and appeals for benefits such as universal credit, personal independence payment, disability living allowance/child disability payment, employment support allowance and carer’s allowance.

To discuss what you might be entitled to and for help with any claims, just email

Contact Zainib by email.

Map of people with ketotic GSDs

We maintain a map of people in the UK affected by the ketotic GSDs, including GSD6, to help facilitate finding peer-to-peer support when it is desired. You can ask to have your name and a choice of contact information added to the map.

Go to a new tab with the map page for more details, or contact the Coordinator.