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Maps of people with GSDs

Peer support is hugely important in rare diseases like GSD. We maintain maps to help people make contact with others with the same GSD.

Click on one of the map thumbnails below to open a new tab with the up-to-date, full-screen, interactive map for that GSD. Then follow the notes beside the map.

In addition to facilitating contact, the maps give an overall impression of the numbers of people affected and their distribution across the country.

To have your name and contact details included on a pin, please contact the coordinator for your GSD, or the AGSD-UK office.

Ketotic GSDs
0, 3, 6 & 9


Von Gierke disease

Pompe disease


McArdle disease


Other GSDs
4, 7 & 13