2021 events are still disrupted by the COVID-19 pandemic. If you plan to attend any of these events, please check arrangements with us or other organisers in advance.
All our routine meetings are cancelled or moved online.
In place of our annual conference we have a Winter Season of talks, presentations and events from December 2020 to February 2021.
We hope to organise regional face-to-face meetings later in 2021.
A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.
Our calendar gives dates and venues of all types of event, often with a link to further details.
We offer many types of event from family days to kids camps, courses, workshops and conferences. More details here.
Events for 2021
|Dec-Feb||Our Winter Season
Talks, presentations and events
|24 Jan||AGSD-UK AGM||Online||AGSD-UK Members|
|26 Jan||Gemma’s Tune-in Tuesday||Online||Everyone|
|31 Jan||McArdle’s Coffee Morning||Online||McArdle’s|
|02 Feb||Gemma’s Tune-in Tuesday||Online||Everyone|
|09 Feb||Gemma’s Tune-in Tuesday||Online||Everyone|
|24 Feb||Virtual Rare Disease Day 2021 UK Wide Parliamentary Event||Online||Everyone|
|24 Feb||Medics 4 Rare Diseases ‘The Unusual Suspects 2021’ free webinar||Online||Everyone|
|26 Feb||PRA Rare Disease Day||Online||Everyone|
|29 Feb||Rare Disease Day||Worldwide||Everyone|
|2 Mar||World Orphan Drug Congress presents Rare Disease Day||Online||Everyone|
|15 April||International Pompe Day||Online||Pompe|
|12-14 May||EURORDIS Membership Meeting||Online||Everyone|
|26-27 June||National Organisation for Rare Diseases (NORD) ‘Living rare, living stronger’||Online||Everyone|