A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.
Our calendar gives dates and venues of all types of event, often with a link to further details.
We offer many types of event from family days to kids camps, courses, workshops and conferences. More details here.
Events for 2024
When? | What? | Where? | Who for? |
14 Jan |
AGM 0930 |
Online | AGSD-UK members |
25 Jan | Living Well Social | Online | Everyone |
29 Feb | Rare Disease Day | Worldwide | Everyone |
14 Mar | Parents’ Group | Online | Everyone |
29 Jul – 5 Aug | Under 21s Walking Course | Brecon Beacons | McArdle’s |
5 Aug – 9 Aug | Main walking course | Brecon Beacons | McArdle’s |