All our routine meetings are cancelled or moved online.
For winter 2021/22 we will again have a Winter Season of talks, presentations and events in place of our annual conference. Details of this January event will be coming soon.
A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.
Our calendar gives dates and venues of all types of event, often with a link to further details.
We offer many types of event from family days to kids camps, courses, workshops and conferences. More details here.
Events for 2022
|Jan||Our Winter Season
Talks, presentations and events
|30 Jan||AGSD-UK AGM||Online||AGSD-UK Members|
|28 Feb||Rare Disease Day||Worldwide||Everyone|
|15 Apr||International Pompe Day||Worldwide||Everyone|
|12 Jun||Hepatic Social
0945 Coffee & Chat
1030 GSD3 Trial Presentation
email email@example.com for zoom details
|30th Jul||Pompe get together||Birmingham||Pompe|