Select Page

Calendar of events

2021 events are still disrupted by the COVID-19 pandemic. If you plan to attend any of these events, please check arrangements with us or other organisers in advance.

All our routine meetings are cancelled or moved online.

In place of our annual conference we have a Winter Season of talks, presentations and events from December 2020 to February 2021

We hope to organise regional face-to-face meetings later in 2021.

A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.

Our calendar gives dates and venues of all types of event, often with a link to further details.

We offer many types of event from family days to kids camps, courses, workshops and conferences. More details here.

Events for 2021

When? What? Where? Who for?
Dec-Feb Our Winter Season
Talks, presentations and events
Online Everyone
24 Jan AGSD-UK AGM Online AGSD-UK Members
26 Jan Gemma’s Tune-in Tuesday Online Everyone
31 Jan McArdle’s Coffee Morning Online McArdle’s
02 Feb Gemma’s Tune-in Tuesday Online Everyone
09 Feb Gemma’s Tune-in Tuesday Online Everyone
24 Feb Virtual Rare Disease Day 2021 UK Wide Parliamentary Event Online Everyone
24 Feb Medics 4 Rare Diseases ‘The Unusual Suspects 2021’ free webinar Online Everyone
26 Feb PRA Rare Disease Day Online Everyone
29 Feb Rare Disease Day Worldwide Everyone
2 Mar World Orphan Drug Congress presents Rare Disease Day Online Everyone
15 April International Pompe Day Online Pompe
12-14 May EURORDIS Membership Meeting Online Everyone
26-27 June National Organisation for Rare Diseases (NORD) ‘Living rare, living stronger’ Online Everyone