A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.
We will list details here as the events are planned, with links to the full details.
Calendar of events
|19-26 Jul 2019||Walking course for people with McArdle’s and other muscle GSDs.|
|24-28 Jul 2019||Children & Parents event for children with McArdle’s.|
|5-6 Oct 2019||Annual conference and workshops|
|6 Oct 2019||Annual General Meeting elect trustees, vote on business topics|
Photo: Having fun at the GSD Kids Camp, 2018
Photo: A group with GSD5 summits Hay Bluff, Brecon Beacons National Park, 2018 Walking Course.
The 2019 course is to be held in Pembrokeshire.
Photo: Annual conference and workshops.
AGSD-UK Annual Conference – Daresbury Park Hotel & Spa, Cheshire. 20 minutes from Manchester airport. 5-6 October 2019.
Photo: A family day from 2018.
Several Family Days are held in locations around the UK each year.
The “Children & Parents event” for McArdle (GSD5) children will be held in Pembrokeshire in late July. See the details here.