We offer a range of events on which you can meet other people affected by your GSD, and others.
Read here about the different types of event, then go to our calendar of events.
Having fun at one of our GSD Kids Camps
GSD children can have a great time joining Kids Camps for children diagnosed with a range of genetic conditions.
For children with hepatic GSDs, camps offered by the Children’s Liver Disease Foundation for 2019 (see News item):
- Wales Family Weekend: 29 – 30 June, Brecon Beacons
- Wild Camp: 20 – 21 July, Oxfordshire CLDF
- Weekender (ages 16 – 24): 9 – 11 August, University of Derby
- Northern Ireland Family Weekend: 5 – 6 October, Belfast
- Family Day: 14 December, West Midlands
GSD5 group summits Hay Bluff on a walking course
Although called “Walking with McArdle’s” this week-long residential course held every summer actually helps people learn the techniques for managing “activities of daily living”. People affected by GSD7 (Tarui diease) have also attended, and anyone with a muscle GSD is welcome to enquire of the GSD5 Coordinator.
Annual conference and workshops.
A family day – young people, parents and medical staff.
Several Family Days are held in locations around the UK each year. These enable affected children and young people, their parents and medical professionals to meet in an informal atmosphere.
Making friends in a supportive environment.
Children & Parents events
A “Children & Parents event” for McArdle (GSD5) children is held each summer. (It is potenially open also to children affected by other muscle GSDs – please contact the GSD5 Coordinator.) This is held over a long weekend, and is a residential get together where children can make friends and parents can network.
Riders on the Prudential Ride London sponsorship event.
Some great comraderie can be gained by joining an AGSD-UK team on a sponsorship event. For 2019 we have 22 places in the Prudential Ride London Surrey event.