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Our events for patients and families

A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.

We will list details here as the events are planned, with links to the full details.

Calendar of events

19-26 Jul 2019 Walking course for people with McArdle’s and other muscle GSDs.
24-28 Jul 2019 Children & Parents event for children with McArdle’s.
5-6 Oct 2019 Annual conference and workshops
6 Oct 2019 Annual General Meeting elect trustees, vote on business topics

Kids Camps

Photo: Having fun at the GSD Kids Camp, 2018

Walking Courses

Photo: A group with GSD5 summits Hay Bluff, Brecon Beacons National Park, 2018 Walking Course.


The 2019 course is to be held in Pembrokeshire.

Details of walking course in July 2019.


Photo: Annual conference and workshops.


AGSD-UK Annual Conference – Daresbury Park Hotel & Spa, Cheshire. 20 minutes from Manchester airport. 5-6 October 2019.

Watch the Conferences page for more details as they become available.

Family Days

Photo: A family day from 2018.

Several Family Days are held in locations around the UK each year.


The “Children & Parents event” for McArdle (GSD5) children will be held in Pembrokeshire in late July.  See the details here.

Watch out for details of more upcoming events.