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McArdle Disease (GSD5)

Activity & Exercise

In McArdle disease, building and maintaining a high level of aerobic fitness is essential. Here we introduce key aspects which can help you do just that.

Children & Parents, Wales, 2024

For 2024 children under 18, together with a parent, are invited to join the “Children & Parents” category within the Under 21s course. They will get the same special attention as in previous years.

For details of the location, accommodation, costs and bookings please see the walking course page.

Children and parents from England, Scotland, France and USA.

Experienced course leaders

These courses are overseen by Andrew Wakelin, the AGSD-UK McArdle’s coordinator, usually with several experienced leaders.  The Under 21s course, of which the Children & Parents are part, is led by Bronte Thomas.

Setting off on a level path.

The programme

In effect this is a mini-version of the walking course but with a greater emphasis on fun and making friends. The learning is more individual and the walks are shorter, and combined with visits and sightseeing that will help to fix the memories.

We will at times walk with the older Under 21s, but a lot of the time the walks will be specially selected to suit the particular group of children attending.

It is intended for children with McArdle’s and one parent, or possibly both. If requested, we will try to accommodate unaffected siblings – please contact us if you would like to consider this.

Old and young on the first Children & Parents event.

A chance to meet young adults

As part of the Under 21s Course there will be much time spent together with young adult McArdle-ites. Seeing how they are getting on can be very reassuring for both the children and their parents.

Travelling from overseas

In the past children and parents have attended from UK, USA, France and Germany. Those from outside the UK have often integrated attendance at this event into a longer family holiday in the UK, giving the best value for the travel cost.

Lucy and Irene admiring a “tree” growing crystals – a present from the mother of a McArdle boy in Japan.



Please see the page for the main walking course.

If you and your McArdle child cannot attend the whole event, but would like to visit for a day, please get in touch with the McArdle’s Coodinator, Andrew Wakelin, to discuss the possibilities.