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McArdle Disease (GSD5)

Activity & Exercise

In McArdle disease, building and maintaining a high level of aerobic fitness is essential. Here we introduce key aspects which can help you do just that.

Children & Parents event, Wales, 2022

For 2022 we are overlapping with the main course. For details, costs and bookings please see the walking course page.

The event is now in its 8th year, and this time will be in the Pembrokeshire Coast National Park. It has previously also been held in the Snowdonia and Brecon Beacons National Parks.

Children and parents from England, Scotland, France and USA.

The programme

In effect this is a mini-version of the walking course but with a greater emphasis on fun and making friends. The learning is more individual and the walks are shorter, and combined with visits and sightseeing that will help to fix the memories.

It is intended for children with McArdle’s and, due to limited accommodation, preferably just one parent. If requested, we will try to accommodate a second parent and/or unaffected siblings – please contact us if you would like us to look into this.

Setting off on a level path.

A chance to meet more adults

There will be several days overlapping with the adult course, so there will be an opportunity for both children and parents to meet with some adult McArdle-ites.

Old and young on the first Children & Parents event.

Travelling from overseas

In the past children and parents have attended from UK, USA and France. Those from outside the UK have often integrated attendance at this event into a longer family holiday in the UK, giving better value on the travel cost.

Lucy and Irene admiring a “tree” growing crystals – a present from the mother of a McArdle boy in Japan.

  BOOKING YOUR PLACE

 

Please see the page for the main walking course.

If you and your McArdle child cannot attend the whole event, but would like to visit for a day, please get in touch with the McArdle’s Coodinator, Andrew Wakelin, to discuss the possibilities.