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McArdle Disease (GSD5)

Activity & Exercise

It is vital to keep active in everyday life and take regular aerobic exercise. We offer opportunities to learn practical techniques in an understanding and supportive atmosphere.

Children & Parents event, Wales, 00 to 00 July 2019


The event is now in its fourth year, and this time will be in the Brecon Beacons National Park, South Wales. Previously it has been held in both Snowdonia and Pembrokeshire National Parks.

In effect this is a mini-version of the walking course but with a greater emphasis on fun and making friends. The learning is more individual and the walks are shorter, and combined with visits and sightseeing that will help to fix the memories.

It is intended for children with McArdle’s and either one or two parents. If requested we will try to accommodate unaffected siblings –please contact us if you would like this. In the past children and parents have attended from UK, USA and France. Those from outside the UK have often in the past integrated attendance at this event into a longer family holiday in the UK.

The details of leader, programme, accommodation, testimonials, walks, travel are much the same as the main course – but this event is shorter and much less challenging. Please see the page for the walking course for all those details.

The cost

The cost of the event this year will be free for affected children, £120 Sterling (approx. US $180) per adult, and £60 for unaffected siblings. This includes all accommodation, food, transport and activities during the week, but you have to get to South Wales. We do not want cost to be a barrier to attendance, so please contact us if you wish to discuss what is possible.

The dates of the event are: Friday 17 to Monday 20 August 2018.


Places will be allocated on a first come first served basis. Please use our on-line booking form here. Once your place is confirmed you will be asked to pay a deposit of £60 per head or the full amount. If you pay only the deposit the balance will be payable one month before the course.

For any further information and questions please email Andrew Wakelin on