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McArdle Disease (GSD5)

Activity & Exercise

It is vital to keep active in everyday life and take regular aerobic exercise. We offer opportunities to learn practical techniques in an understanding and supportive atmosphere.

Walk over Wales

It seemed crazy. McArdle people doing a sponsored walk over Wales, over from North to South and over the main mountain peaks, it was 210 miles in distance with 35,000 feet of ascent. This adventure was rightly abbreviated to ‘WoW’!

The objective of the walk was to raise awareness of McArdle’s – so that more are diagnosed at an early age. This walk helped bring McArdle’s to the attention of teachers, youth leaders and parents as well as the medical profession. Getting a diagnosis enables people to be fitter, healthier, more active, have less episodes of serious injury and avoid stays in hospital.

The 32-day walk was led by Andrew Wakelin, McArdle’s Coordinator. The route was planned from his extensive experience of walking with McArdle’s. The route took in the main peak in each of the mountain groups, and many others, as they travelled south. As far as possible days were planned to start on level ground or only a slight incline for the first mile. The finish point was also the start point the next day, with a support driver shuttling them back and fore to their B&B accommodation.

Andrew Wakelin, Stacey Reason, Dan Chambers, Andy Williams and Charlton Thear finished this massive challenge at the Senedd (the parliament building) on the waterfront at Cardiff Bay on 2nd August 2010. They had made local headlines as they traveled through Wales, and then they made the ITV Wales news at 6pm that day. You can see the news item on YouTube here.

The team raised a total of about £14,000 for AGSD-UK’s work on McArdle’s, thanks to their many sponsors. Dianne Berryman and Lorraine Baguley in Australia and Marcelo de Luca in Argentina, walked in support and also raised funds for the cause.

The story of the walk is published in “One Step at a Time” by Stacey L Reason.

The WoW event was the inspiration for the “Walking with McArdle’s” courses which have been held each year since and which are spreading around the world.