A hugely important part of our work is the holding of events where people affected by these ultra-rare conditions can meet, share experiences and learn about their condition.
Our calendar gives dates and venues of all types of event, often with a link to further details.
Events for 2019
|20-26 May||IamGSD Global Walking Week||People with McArdle’s and related muscle GSDs.|
|19 Jun||Presentation “Gene Therapy approaches for LSD” at conference of British Society for Gene and Cell Therapy||Those interested in Pompe (GSD2), but it is just one session in the conference.|
|20 Jun||Neuromuscular Centre Open Day, Winsford, Cheshire. More details here.||All muscle GSDs|
|19-26 Jul||Walking course, Pembrokeshire||McArdle’s (GDSD5) and other muscle GSDs|
|24-28 Jul||Children & Parents event, Pembrokeshire||Children with McArdle’s (GSD5) and a parent/s|
|4 Aug||Prudential RideLondon-Surrey, sponsorship cycling event||Everyone – we have 20 places available|
|5-6 Oct||Annual conference and workshops, Cheshire||Everyone|
|6 Oct||Annual General Meeting – elect trustees, vote on business topics, Cheshire||Members and visitors|
|14-16 Nov||IGSD2019, 5th International GSD Conference, Brazil||
Events for 2020
|29 Feb||Rare Disease Day||Everyone|
|15 Apr||International Pompe Day, UK regional meetings||Pompe|