Julie Garfield has been making bag tags for Pompe children to go back to school.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
The GSD3 get-together with the CATS at Cudworth Village Hall, on 14 March, has been postponed until later in the year.
The family day at the Evelina Hospital has been postponed from 7 March to later in the year, due to health concerns.
Coming up on Saturday 14 March is another get-together for those with GSD3. Bring children, family and friends.
For the AGSD-UK Family Day at Great Ormond Street, lots of families came along and friendships and support networks were created.