This year AGSD-UK will again be offering a series of talks and presentations
AGSD-UK are deeply saddened to learn of the recent passing of Louise Bett.
It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at risk of COVID-19 and should be offered a COVID vaccine.
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
RCPCH &Us have a survey for children & young people aged 13-25, who have a rare disease & live in the UK.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.