The Royal College of Paediatrics and Child Health invites young people to network with each other, support groups, medical professionals and policy makers.
Dates for 2019 – families with children affected by hepatic GSDs can access children’s camps through the Children’s Liver Disease Foundation.
For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.
The Wendy House Nursery in Erdington, Birmingham, has signed up for ‘Jeans for Genes’ in 2019 to fundraise for AGSD-UK!
AGSD-UK member Abdullah Amerat won first prize in London’s Hackney Youth Awards, recognising his achievements in his local community.