RCPCH &Us Rare Disease Survey.
RCPCH &Us have a survey for children & young people aged 13-25, who have a rare disease & live in the UK.
Winner announced of the PST Avatar Competition.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.
Winter Season of GSD talks and events is here.
Over the next few months AGSD-UK is offering a series of talks and presentations which will be uploaded each Monday
Seeking Lafora patients: Angelina’s story.
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
How are you living with a liver GSD?
AGSD-UK has teamed up with Vitaflo to learn more about how you live with liver GSD
Rob Wood.
Rob Wood, long time AGSD-UK supporter passes way too soon.