Help your child enjoy a hospital visit!
Families attending Great Ormond Street or Birmingham Children’s hospitals are welcome to come along to family days this autumn.
Family Fun Day at Royal Victoria Infirmary, Newcastle.
Children and families from North East England got together for a Family Fun Day at the Royal Victoria Infirmary, Newcastle.
Amy’s school Fun Run for her brother Eric.
Twin boys born with GSD1a and 8 year old big sister Amy organised a school Fun Run to help fund research.
Invitation to young people with a rare condition
The Royal College of Paediatrics and Child Health invites young people to network with each other, support groups, medical professionals and policy makers.
Camps available: Children’s Liver Disease Foundation
Dates for 2019 – families with children affected by hepatic GSDs can access children’s camps through the Children’s Liver Disease Foundation.
New infographic helps celebrate International Pompe Day
For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.