Friday, 6th August 2021 | GSD families, News, Young people
It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at risk of COVID-19 and should be offered a COVID vaccine.
Friday, 7th May 2021 | Cori disease, GSD families, Hers disease GSD6, News, Pompe disease, Research, Support, Von Gierke disease
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
Thursday, 25th March 2021 | GSD families, News, Research, Young people
RCPCH &Us have a survey for children & young people aged 13-25, who have a rare disease & live in the UK.
Friday, 12th February 2021 | GSD families, News, Pompe disease, Support, Young people
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.
Friday, 4th December 2020 | GSD families, News, Support
Over the next few months AGSD-UK is offering a series of talks and presentations which will be uploaded each Monday
Friday, 27th November 2020 | GSD families, News, Research
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?