BIMDG have provided a list of frequently asked questions about the vaccination programme for COVID-19
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
AGSD-UK has teamed up with Vitaflo to learn more about how you live with liver GSD
Avalglucosidase alfa reaches its first important regulatory milestone
AGSD-UK working with NICE towards approval for new treatment for Pompe disease.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study