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Rare Disease Day 2024.

Rare Disease Day 2024.

Today is Rare Disease Day! This rarest of days, 29th February is a great opportunity to raise awareness about rare conditions. Visit https://www.rarediseaseday.org/ to find out more about how to get involved in this international campaign. Thanks...
Virtual Festive Event.

Virtual Festive Event.

AGSD-UK is holding a Virtual Festive Event on the 9th of December at 1.00pm. Come along and make sure you wear a Festive hat, as there will be a prize for the best headgear. We will have a Quiz and time for everyone to catch up. For more information, please contact...
Rare Disease Day 2023.

Rare Disease Day 2023.

Rare Disease Day is taking place on 28th February 2023   This Rare Disease Day is an opportunity to highlight the importance of effective, coordinated care for people living with rare conditions. Visit the Rare Disease Day 2023 website to find out more! Rare...
Help Us Raise Awareness.

Help Us Raise Awareness.

Help us raise awareness and share experiences   With rare disease day approaching at the end of February can you help us raise awareness of GSD and what it’s like to live with the condition? Just send a short video clip of the way your condition affects a...