Eurordis H-Care Survey of rare diseases results.
Eurordis key findings from a survey on patients’ and carers’
experience of medical care for their rare diseases.
Winner announced of the PST Avatar Competition.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.
Vitamin D supplements for clinically extremely vulnerable.
Free daily vitamin D supplements are available if you’re at high risk (clinically extremely vulnerable) from coronavirus (COVID-19).
COVID-19 Vaccine FAQ’s.
BIMDG have provided a list of frequently asked questions about the vaccination programme for COVID-19
Winter Season of GSD talks and events is here.
Over the next few months AGSD-UK is offering a series of talks and presentations which will be uploaded each Monday
Glisten August 2020 is out!
The latest edition of our magazine Glisten is here, dated August 2020. Packed with news, reports, research and fundraising ideas.