Benefits Advisor joins the AGSD-UK team.
AGSD-UK has appointed Julie Jackson to a temporary post to address a large increase in requests for help with state benefits.
AGSD-UK new registrations up by 26% in 2019.
During 2019 the rate of new registrations with AGSD-UK increased by 26% over the previous year. We consider the reasons why.
It’s out… Glisten Spring 2020 is here!
The latest edition of our magazine is out. Glisten Spring 2020 is here, packed with news, reports, announcements and information.
GSD3 get-together – 14 March.
Coming up on Saturday 14 March is another get-together for those with GSD3. Bring children, family and friends.
Eurordis H-Care Survey of rare diseases.
AGSD-UK supports the Eurordis-led initiative of a survey of care in rare diseases across Europe. It takes just 10 minutes!
Your thoughts on discreet labels for clinic visits?
Would you like to meet other GSD patients? What do you think of small sticky labels with the AGSD-UK tree logo for use in clinic?