Researchers at Freiburg University Hospital along with international partners are conducting a study on women’s health and pregnancy in hepatic GSDs.
If you are interested in taking part in this important study you can find out more here.
Just two months to go until the start of the 2026 McArdle walking courses. This year to be held in the beautiful Pembrokeshire National Park in south west Wales.
Don’t miss the chance to share support, find out about latest developments and try new activities -you’ll get a warm welcome in a great venue and crèche places are available.
Full details of the 2025 McArdle walking courses are now available, and we are open for bookings.
Today is Rare Disease Day!
Find out about how to get involved in current hepatic GSD research studies.