This year AGSD-UK will again be offering a series of talks and presentations
An article full of FAQ’s that will be of interest to anyone who is extremely vulnerable and is receiving homecare.
Making the Unseen Seen: Rare disease and the lessons learned from the COVID-19 pandemic.
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
Eurordis key findings from a survey on patients’ and carers’
experience of medical care for their rare diseases.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.