More personal stories wanted
AGSD-UK is appealing for more personal stories from all the GSDs. There is great value in the the stories for those who are newly diagnosed.
Camps available: Children’s Liver Disease Foundation
Dates for 2019 – families with children affected by hepatic GSDs can access children’s camps through the Children’s Liver Disease Foundation.
Neuromuscular Centre Open Day on 20 June
The Neuromuscular Centre at Winsford, Cheshire, is holding an Open Day on Thursday 20 June. Of special interest for muscle GSDs.
Are statistics your thing?
We‘ve been improving our database and ensuring GDPR compliance. We are now starting to have fascinating insights into our statistics.
CATS first birthday get together
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.
Baroness Walmsley to open conference
Baroness Walmsley, Liberal Democrat Deputy Leader in the House of Lords, is to open our annual conference. 5 & 6 October. Reservations now open.