Reserve your places now! AGSD-UK Conference 2019, Daresbury, Cheshire. Here are details of the expected presentations and workshops.
There is now a private option for Creatine Kinase (CK) blood tests, with blood taken yourself at home and posted to the lab.
GSD and Me – Vitaflo have launched a new website resource for five of the most common liver GSDs – 0, 1, 3, 6 and 9.
AGSD-UK is appealing for more personal stories from all the GSDs. There is great value in the the stories for those who are newly diagnosed.
Dates for 2019 – families with children affected by hepatic GSDs can access children’s camps through the Children’s Liver Disease Foundation.
The Neuromuscular Centre at Winsford, Cheshire, is holding an Open Day on Thursday 20 June. Of special interest for muscle GSDs.