International Pompe Day.
The goal of International Pompe Day, 15th of April, is to foster international awareness of Pompe Disease, a life-changing inherited condition. It’s estimated that there are 35–40 children living with infantile-onset Pompe in the UK. This especially rare and most severe form of the disease particularly affects the heart and skeletal muscles.
The parents of baby Arla from the Wirral are keen to help raise awareness of the condition.
You can find out more here
