Sioned Williams to give debut performance of new instrument, the Soveida Harp, which articulates its sound in eerie stereo.
Every year people with muscle GSDs, particularly McArdle’s for which the most effective treatment is physical activity, participate in this walking week.
The McArdle disease and related disorders service, National Hospital for Neurology and Neurosurgery in London, is recruiting a Clinical Fellow.
The 9th year of the “Walking with McArdle’s” course is to be held over 19 to 26 July 2019.
A case report from the national McArdle Clinic highlights the benefits achieved through strength training with a local personal trainer.
The future of nutrition for McArdle disease is the subject of an international workshop to be hosted in London by IamGSD and CNMD.