Debut performance of new harp by GSD5 patient
Sioned Williams to give debut performance of new instrument, the Soveida Harp, which articulates its sound in eerie stereo.
IamGSD’s Global Walking Week starts 20 May
Every year people with muscle GSDs, particularly McArdle’s for which the most effective treatment is physical activity, participate in this walking week.
McArdle’s service seeks a Clinical Fellow
The McArdle disease and related disorders service, National Hospital for Neurology and Neurosurgery in London, is recruiting a Clinical Fellow.
Walking course announced
The 9th year of the “Walking with McArdle’s” course is to be held over 19 to 26 July 2019.
Resistance training aids McArdle’s
A case report from the national McArdle Clinic highlights the benefits achieved through strength training with a local personal trainer.
Nutrition in McArdle’s – international workshop
The future of nutrition for McArdle disease is the subject of an international workshop to be hosted in London by IamGSD and CNMD.