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New Continuum of Care Model for McArdle’s.

Help with achieving an optimal state

A Continuum of Care model has been developed by an international team of expert clinicians and patient advocates, led by IamGSD and published in the Neuromuscular Disorders journal. It serves as a practical tool for clinicians and McArdle patients.

It identifies areas of learning for patients to achieve an optimal state. The model outlines five pivotal steps (diagnosis; understanding; acceptance; learning and exercise) to assist clinicians to determine patient-specific learning needs. This model serves as a translational tool to help optimize care for these patients.

This tool started with AGSD-UK about five years ago, when it was called the Peak Performance Pyramid. The experience of using it then enabled it to be developed into this internationally agreed continuum of care model.

More details and link to the paper