Seeking Lafora patients: Angelina’s story.
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
AGSD-UK has teamed up with Vitaflo to learn more about how you live with liver GSD
Rob Wood, long time AGSD-UK supporter passes way too soon.
Julie Garfield has been making bag tags for Pompe children to go back to school.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
The GSD3 get-together with the CATS at Cudworth Village Hall, on 14 March, has been postponed until later in the year.