Newsflash – Evelina family day postponed!
The family day at the Evelina Hospital has been postponed from 7 March to later in the year, due to health concerns.
The family day at the Evelina Hospital has been postponed from 7 March to later in the year, due to health concerns.
Coming up on Saturday 14 March is another get-together for those with GSD3. Bring children, family and friends.
For the AGSD-UK Family Day at Great Ormond Street, lots of families came along and friendships and support networks were created.
Families attending Great Ormond Street or Birmingham Children’s hospitals are welcome to come along to family days this autumn.
Children and families from North East England got together for a Family Fun Day at the Royal Victoria Infirmary, Newcastle.
Twin boys born with GSD1a and 8 year old big sister Amy organised a school Fun Run to help fund research.