AGSD-UK can provide support to individuals and families affected by GSD.
The walking course for this year is to be held in the Pembrokeshire Coast National Park, 30 July to 6 August. Full details now available here on our website.
International Pompe Day – 15th April 2022
Researchers are looking for new and improved drugs and treatments for Glycogen Storage Disease.
More information about the newly published Rare Diseases Action Plan for England.
Sioned Williams celebrates Rare Disease Day with a short video talk about her life and career with McArdle’s, and an appeal via JustGiving.