Maggie Lilburn
Maggie Lilburn dies after long illness
Coronavirus: How to wear a mask.
How to wear a face mask correctly
MetabERN survey – deadline extension!
MetabERN has extended its survey deadline to June 21st 2020
NORD plans Virtual Forum – 18 and 19 July.
For 2020 NORD plans to hold its annual patient and family forum as a virtual event. It will be on 18 and 19 July
Benefits Advisor joins the AGSD-UK team.
AGSD-UK has appointed Julie Jackson to a temporary post to address a large increase in requests for help with state benefits.
Move for USA-based GSD expert Dr. David Weinstein.
Dr. Weinstein, long-time champion of improved diagnosis and treatment for hepatic GSDs due to move to Passage Bio as VP.