International Pompe Day 15 April 2023.
The IPA focused this year’s International Pompe Day on the importance of movement, sharing stories from the community under the slogan “Every Move Counts”.
London Marathon 2023.
London Marathon 2023 AGSD-UK has 4 brilliant and brave supporters running the London Marathon on 23rd April. To read their motivation for running please have a look at the individual stories on their fundraising pages. Any donations would be very much appreciated....
Great North Run 2022.
This Sunday is the GNR and AGSD-UK have several runners taking part.
Sioned’s Rare Disease Day 2022.
Sioned Williams celebrates Rare Disease Day with a short video talk about her life and career with McArdle’s, and an appeal via JustGiving.
Nigel Walker runs London Marathon to support AGSD-UK.
Well done to Nigel Walker who has completed the 2021 London Marathon.
3 Peak Challenge successfully completed!
Florence Osborne and a team of friends have successfully completed the gruelling 3 Peaks Challenge.