The IPA focused this year’s International Pompe Day on the importance of movement, sharing stories from the community under the slogan “Every Move Counts”.
This Sunday is the GNR and AGSD-UK have several runners taking part.
Sioned Williams celebrates Rare Disease Day with a short video talk about her life and career with McArdle’s, and an appeal via JustGiving.
Well done to Nigel Walker who has completed the 2021 London Marathon.
Florence Osborne and a team of friends have successfully completed the gruelling 3 Peaks Challenge.