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Sioned’s Rare Disease Day 2022.

Celebrating Rare Disease Day 2022

A professional harpist who has performed worldwide, Sioned Williams has often found it difficult to manoeuvre within a high-profile career whilst experiencing the complexities of living with McArdle’s, an ultra-rare muscle disease. Sioned is celebrating Rare Disease Day on 28 February 2022 with a short talk about her life in the video below, and an appeal via JustGiving on behalf of AGSD-UK.

Please visit Sioned’s JustGiving page.

 Sioned’s JustGiving page

Or for more information on how to make the most of the day, visit the Rare Disease Day website.

 Rare Disease Day website