Celebrating Rare Disease Day 2022
A professional harpist who has performed worldwide, Sioned Williams has often found it difficult to manoeuvre within a high-profile career whilst experiencing the complexities of living with McArdle’s, an ultra-rare muscle disease. Sioned is celebrating Rare Disease Day on 28 February 2022 with a short talk about her life in the video below, and an appeal via JustGiving on behalf of AGSD-UK.
Please visit Sioned’s JustGiving page.
Or for more information on how to make the most of the day, visit the Rare Disease Day website.