There are few clear written resources explaining Pompe disease, but we are now very pleased to report that Amicus Therapeutics UK Ltd have released a new infographic just in time for International Pompe Day on Monday 15 April 2019.
It is a leaflet that unfolds in to a display poster. With the help of strong graphics it simply describes both Infantile-onset and Late-onset Pompe disease. It will be especially useful for children to use to explain their condition at school.
Copies to be distributed
The AGSD-UK Specialist Care Advisor, Jane Lewthwaite, will send copies of the new leaflet to all members affected by Pompe in the next mailshot.