Amy’s school Fun Run for her brother Eric.
Twin boys born with GSD1a and 8 year old big sister Amy organised a school Fun Run to help fund research.
Invitation to young people with a rare condition
The Royal College of Paediatrics and Child Health invites young people to network with each other, support groups, medical professionals and policy makers.
Camps available: Children’s Liver Disease Foundation
Dates for 2019 – families with children affected by hepatic GSDs can access children’s camps through the Children’s Liver Disease Foundation.
Do you feel no-one has heard of GSD?
That is what member Niamh, who has GSD3, thought until she got a shock as she completed her GCSE Biology exam.
Nursery adopts Jeans For Genes to fundraise for AGSD-UK
The Wendy House Nursery in Erdington, Birmingham, has signed up for ‘Jeans for Genes’ in 2019 to fundraise for AGSD-UK!
Hackney Youth Awards first prize winner
AGSD-UK member Abdullah Amerat won first prize in London’s Hackney Youth Awards, recognising his achievements in his local community.