McArdle’s walking courses 2023.
The dates for the McArdle’s walking courses for 2023 have been announced. Courses will be in Snowdonia, based in the village of Tremadog.
Great North Run 2022.
This Sunday is the GNR and AGSD-UK have several runners taking part.
LSD Collaborative Community Survey 2022.
Clinical and Social Care Services Please take the chance to respond to an important survey to improve understanding about the quality of care you experience from your specialist hospital clinic, homecare, and other social care services. The survey is designed by the...
International GSD conference 2022.
The International GSD Conference (IGSD2022) will be virtual this year.
NICE recommends Avalglucosidase alfa as a treatment option for Pompe.
24th August 2022 The National Institute for Health and Care Excellence today published its recommendation of Avalglucosidase alfa (AVAL) as an option for treating Pompe in babies, children, young people and adults, where AVAL is provided according to the commercial...