New and Improved CureGSD1b Website.
The updated CureGSD1b website is now live.
The updated CureGSD1b website is now live.
The updated GSD & Me website is now live.
An update on the appraisal of treatments for Pompe by NICE.
First patient receives Moderna mRNA trial infusion for GSD1a.
The commitment is at UCLH, 10am to 4pm every Wednesday, to support the McArdle team and to directly assist and guide patients.
Just a month to go to the “Walking in Wiltshire” get-together weekend for all those with McArdle’s. 17-19 June.