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Help Us Raise Awareness.

Help us raise awareness and share experiences


With rare disease day approaching at the end of February can you help us raise awareness of GSD and what it’s like to live with the condition?

Just send a short video clip of the way your condition affects a typical day. You can be as creative as you like. Or just talk to camera about your experience and the things that help you cope. Any length under 2 minutes is fine. Contact for more information and a form for you to specify how your clip can be used.

Or maybe you’d prefer to share a paragraph telling your story for our website.

Click here for further details.

Person Stories

Submissions before 21st February are eligible for gift card prizes for story telling.

Thanks for helping to improve understanding of life with GSD.