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Have you read the latest news?
International Pompe Day.
International Pompe Day – 15th April 2022
What is a Clinical Trial?
Researchers are looking for new and improved drugs and treatments for Glycogen Storage Disease.
England’s first Rare Diseases Action Plan published.
More information about the newly published Rare Diseases Action Plan for England.
Sioned’s Rare Disease Day 2022.
Sioned Williams celebrates Rare Disease Day with a short video talk about her life and career with McArdle’s, and an appeal via JustGiving.
Research Study – Exercise and Pompe Disease.
Invitation to participate in research for UK adults living with Pompe.
Rare Disease Day 2022.
1 week to go until Rare Disease Day 2022.
Gene Therapy Trial for GSD1a Progress.
Trials for a gene therapy treatment for GSD1a are continuing.
GSD3 Website Updates.
New research information has been added to the GSD3 website page.
Use the scroll links to move back and fore through our news stories.
If you have a GSD news story message us or see Notes for contributors.
Read some personal stories
Do you have an interesting personal story to tell? Just message us or visit the Notes for contributors.
For personal stories on an individual GSD, visit the page for that GSD.
What and who we are
- National support group for those affected by Glycogen Storage Disease (GSD) and their families.
- Membership based with an elected board of trustees.
- A company limited by guarantee and a registered charity.
- Collaborators with UK rare disease and international GSD groups.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.