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Rare Disease Day 2022.

Rare Disease Day 2022 – 1 week to go

 Rare Disease Day on 28th February is a chance to grab some much-needed attention for rare conditions. 

This year, the rare disease community is being asked to #LightUpForRare by lighting or decorating your home with the Rare Disease Day colours and sharing your story. 

You can find out more by downloading the instructions on how to get involved

Light Up for Rare instructions

and visiting the rare repository to upload your story and read others.

 Rare Repository

For more information on how to make the most of the day to raise the profile of Glycogen Storage Disease and other rare conditions, visit the Rare Disease Website.

 Rare Disease website