CureGSD1b Research Ready Data Collection Plan.
The CureGSD1b Research Alliance is working extensively on a full understanding of the research landscape related to GSD1b at the moment.
Winter Season 2022
We again will be releasing videos on every Monday of January for our Winter Season.
Progress on NICE assessment of new treatments.
An update on the appraisal of treatments for Pompe by NICE.
Nigel Walker runs London Marathon to support AGSD-UK.
Well done to Nigel Walker who has completed the 2021 London Marathon.
Winter Season of GSD talks and events coming soon.
This year AGSD-UK will again be offering a series of talks and presentations
Louise Bett.
AGSD-UK are deeply saddened to learn of the recent passing of Louise Bett.