New and Improved CureGSD1b Website.
The updated CureGSD1b website is now live.
GSD & ME website is updated.
The updated GSD & Me website is now live.
Update on NICE assessment of new treatments.
An update on the appraisal of treatments for Pompe by NICE.
Moderna mRNA trial infusion for GSD1a.
First patient receives Moderna mRNA trial infusion for GSD1a.
Volunteering opportunity at McArdle Clinic.
The commitment is at UCLH, 10am to 4pm every Wednesday, to support the McArdle team and to directly assist and guide patients.