Update on NICE assessment of new treatments.
An update on the appraisal of treatments for Pompe by NICE.
Moderna mRNA trial infusion for GSD1a.
First patient receives Moderna mRNA trial infusion for GSD1a.
Volunteering opportunity at McArdle Clinic.
The commitment is at UCLH, 10am to 4pm every Wednesday, to support the McArdle team and to directly assist and guide patients.
McArdle’s Walking in Wiltshire weekend.
Just a month to go to the “Walking in Wiltshire” get-together weekend for all those with McArdle’s. 17-19 June.
AGSD-UK Help and Support.
AGSD-UK can provide support to individuals and families affected by GSD.
“The McArdle’s Experience” walking course.
The walking course for this year is to be held in the Pembrokeshire Coast National Park, 30 July to 6 August. Full details now available here on our website.