Thursday, 10th November 2022 | News, Support
Register your interest now for The Main Event 2023.
Tuesday, 1st November 2022 | News, Research, Support, Von Gierke disease
GSD1a Patient Research Please find below a link to an invitation for UK families affected by GSD1a to take part research by Liberating Research to improve understanding of the impact of the condition. Who can participate?People living with GSD1a and their partners /...
Saturday, 24th September 2022 | Exercise, McArdle disease, News, Tarui disease, Young people
The dates for the McArdle’s walking courses for 2023 have been announced. Courses will be in Snowdonia, based in the village of Tremadog.
Sunday, 11th September 2022 | Fundraising, News
This Sunday is the GNR and AGSD-UK have several runners taking part.
Tuesday, 6th September 2022 | News, Research, Support
Clinical and Social Care Services Please take the chance to respond to an important survey to improve understanding about the quality of care you experience from your specialist hospital clinic, homecare, and other social care services. The survey is designed by the...
Tuesday, 30th August 2022 | International, News, Research
The International GSD Conference (IGSD2022) will be virtual this year.