Transatlantic diagnosis correction, after 29 years!
Steve Wills from Indiana, USA, was diagnosed with McArdle disease (GSD5) when he was 8. He had come to think he was not like others with McArdle’s…
EMA accepts regulatory submission for avalglucosidase alfa.
Avalglucosidase alfa reaches its first important regulatory milestone
Support AGSD-UK with AmazonSmile.
Help fundraise for AGSD-UK using AmazonSmile for all Amazon purchases
Back to school bag tags.
Julie Garfield has been making bag tags for Pompe children to go back to school.
AGSD-UK attend NICE scoping workshop.
AGSD-UK working with NICE towards approval for new treatment for Pompe disease.
Glisten August 2020 is out!
The latest edition of our magazine Glisten is here, dated August 2020. Packed with news, reports, research and fundraising ideas.