Back to school bag tags.
Julie Garfield has been making bag tags for Pompe children to go back to school.
AGSD-UK attend NICE scoping workshop.
AGSD-UK working with NICE towards approval for new treatment for Pompe disease.
Glisten August 2020 is out!
The latest edition of our magazine Glisten is here, dated August 2020. Packed with news, reports, research and fundraising ideas.
COVID-19 impact survey for families.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
Pompe Support Team’s leaflet used in Australia!
Pompe Support Team’s Medical Overview leaflet is now being used in Australia.
Audentes Pompe Gene Therapy Trial News.
Audentes is now enrolling patients with late-onset Pompe disease in the Phase 1/2 clinical trial.