Ann Phillips, 1934–2020, co-founder of AGSD-UK.
We are sad to report that AGSD-UK co-founder Ann Phillips has passed away shortly after contracting COVID-19 in her care home. She was 86.
Transatlantic diagnosis correction, after 29 years!
Steve Wills from Indiana, USA, was diagnosed with McArdle disease (GSD5) when he was 8. He had come to think he was not like others with McArdle’s…
EMA accepts regulatory submission for avalglucosidase alfa.
Avalglucosidase alfa reaches its first important regulatory milestone
Support AGSD-UK with AmazonSmile.
Help fundraise for AGSD-UK using AmazonSmile for all Amazon purchases
Back to school bag tags.
Julie Garfield has been making bag tags for Pompe children to go back to school.
AGSD-UK attend NICE scoping workshop.
AGSD-UK working with NICE towards approval for new treatment for Pompe disease.