Winter Season of GSD talks and events is here.
Over the next few months AGSD-UK is offering a series of talks and presentations which will be uploaded each Monday
Seeking Lafora patients: Angelina’s story.
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
How are you living with a liver GSD?
AGSD-UK has teamed up with Vitaflo to learn more about how you live with liver GSD
Rob Wood.
Rob Wood, long time AGSD-UK supporter passes way too soon.
Back to school bag tags.
Julie Garfield has been making bag tags for Pompe children to go back to school.
COVID-19 impact survey for families.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study