Neuromuscular Centre Open Day on 20 June
The Neuromuscular Centre at Winsford, Cheshire, is holding an Open Day on Thursday 20 June. Of special interest for muscle GSDs.
Get-togethers on International Pompe Day
Thanks to the Pompe Support Team and other hosts, successful get-togethers were held around the UK to celebrate International Pompe Day.
Do you feel no-one has heard of GSD?
That is what member Niamh, who has GSD3, thought until she got a shock as she completed her GCSE Biology exam.
New infographic helps celebrate International Pompe Day
For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.
CATS first birthday get together
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.