AGSD-UK welcomes national conversation on rare diseases.
Minister at Dept. of Health and Social Care announces a national conversation to understand how to improve care for rare diseases.
Minister at Dept. of Health and Social Care announces a national conversation to understand how to improve care for rare diseases.
Southeastern Trains are planning to trial a scheme next year to help passengers with hidden disabilities, which could include GSD.
A phenomenon identified on AGSD-UK’s walking courses has been presented in a poster at the World Muscle Society Congress.
Recent papers: one on genetic testing for high CK, a GeneReviews update on McArdle’s and a review of gene therapy in GSDs.
As Allan Muir leaves AGSD-UK, we try to capture in words what he has achieved for the UK and international GSD community over his 28 years of involvement.