Rare disease and the lessons learned from the COVID-19 pandemic.
Making the Unseen Seen: Rare disease and the lessons learned from the COVID-19 pandemic.
Liver Glycogen Storage Disease Top 11 Questions.
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
Eurordis H-Care Survey of rare diseases results.
Eurordis key findings from a survey on patients’ and carers’
experience of medical care for their rare diseases.
Winner announced of the PST Avatar Competition.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.
Vitamin D supplements for clinically extremely vulnerable.
Free daily vitamin D supplements are available if you’re at high risk (clinically extremely vulnerable) from coronavirus (COVID-19).
COVID-19 Vaccine FAQ’s.
BIMDG have provided a list of frequently asked questions about the vaccination programme for COVID-19