Winter Season 2022
We again will be releasing videos on every Monday of January for our Winter Season.
Winter Season of GSD talks and events coming soon.
This year AGSD-UK will again be offering a series of talks and presentations
Homecare and Coronavirus.
An article full of FAQ’s that will be of interest to anyone who is extremely vulnerable and is receiving homecare.
Rare disease and the lessons learned from the COVID-19 pandemic.
Making the Unseen Seen: Rare disease and the lessons learned from the COVID-19 pandemic.
Liver Glycogen Storage Disease Top 11 Questions.
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
Eurordis H-Care Survey of rare diseases results.
Eurordis key findings from a survey on patients’ and carers’
experience of medical care for their rare diseases.