Hackney Youth Awards first prize winner
AGSD-UK member Abdullah Amerat won first prize in London’s Hackney Youth Awards, recognising his achievements in his local community.
FDA grants Breakthrough Therapy Designation to Amicus
The U.S. FDA has granted Breakthrough Therapy Designation to Amicus’ AT-GAA in Late Onset Pompe Disease.
AGSD-UK member Charlie Power is now famous!
Charlie appeared in the newspaper of the Queen Elizabeth Hospital Birmingham. Here is his story, reprinted from news@uhb.
Amici! 101 Tips for Pompe now in Italian
Congratulations to Martina on her degree in translation. Her final project was translating 101 Tips for Pompe into Italian.
Come, join, meet, share… International Pompe Day
Come and join us at one of five venues to help celebrate International Pompe Day, Friday 15 April 2019.