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Come, join, meet, share… International Pompe Day

Come and join us for International Pompe Day, Friday 15 April.

For International Pompe Day, for several years the Pompe Support Team has organised a weekend social in Coventry. But for 2019 they decided to ‘go large’. 

They have organised four afternoon events around the UK in Southampton, Bolton, London and Swansea, on Friday 15 April, plus a weekend social in Stoke on Trent on the Wednesday 13 and Thursday 14 April.  

Each year after our conference, when asked “What’s best?” most people say, “Time to talk”. So these meetings are simple social events.   

Bring a friend or plus one. Families welcome. All venues are accessible. For more information contact Jane Lewthwaite 07484 055334.

Check your post, invitations are on their way.

Read more detail – download a PDF on the invitation.


Go to the IPA web site page for International Pompe Day.

Our photo is from the 2018 International Pompe Day get-together.