Come, join, meet, share… International Pompe Day
Come and join us at one of five venues to help celebrate International Pompe Day, Friday 15 April 2019.
Naidex exhibition will focus on staying independent
Free exhibition of aids and equipment to run again in 2019, at the NEC, Birmingham, 26 & 27 March.
Promising initial results in gene therapy trial
Dr David Weinstein reports rewarding preliminary results from the first ever gene therapy trial in a Glycogen Storage Disease.
Walking course announced
The 9th year of the “Walking with McArdle’s” course is to be held over 19 to 26 July 2019.
It’s not fake news!
58% of respondents to our 2018 survey said the AGSD-UK web site is their main source of information about GSD.
Resistance training aids McArdle’s
A case report from the national McArdle Clinic highlights the benefits achieved through strength training with a local personal trainer.