Did you know we have an interactive glossary?
Plenty of medical and technical words are used in our website, but help is at hand with our on-line interactive glossary.
AGSD-UK helps fulfil football dreams for Ismail.
Ismail lives with Infantile Onset Pompe Disease. Aged 19, his abiding passion is football. He plays using an adapted wheelchair.
International GSD conference in Brazil next month.
The 5th International GSD Conference (IGSD2019) takes place in Porto Alegre, Brazil, from 14 to 16 November 2019.
AGSD-UK welcomes national conversation on rare diseases.
Minister at Dept. of Health and Social Care announces a national conversation to understand how to improve care for rare diseases.
Scheme helps rail passengers with hidden disabilities.
Southeastern Trains are planning to trial a scheme next year to help passengers with hidden disabilities, which could include GSD.
AGSD-UK board of trustees seeks new members.
Three trustees retired at the AGM, so the board is now down to four members and it is actively seeking new trustees. Can you help?