Scheme helps rail passengers with hidden disabilities.
Southeastern Trains are planning to trial a scheme next year to help passengers with hidden disabilities, which could include GSD.
AGSD-UK board of trustees seeks new members.
Three trustees retired at the AGM, so the board is now down to four members and it is actively seeking new trustees. Can you help?
Patient-identified phenomenon confirmed in GSD5.
A phenomenon identified on AGSD-UK’s walking courses has been presented in a poster at the World Muscle Society Congress.
Recent papers on CK, GSD5 and gene therapy.
Recent papers: one on genetic testing for high CK, a GeneReviews update on McArdle’s and a review of gene therapy in GSDs.
AGSD-UK says farewell to Allan Muir.
As Allan Muir leaves AGSD-UK, we try to capture in words what he has achieved for the UK and international GSD community over his 28 years of involvement.
The AGSD-UK office has moved!
The AGSD-UK office has now moved from Droxford, near Southampton, to Chester le Street, near Durham. The phone number stays the same.